Project status: closed
This project aimed to develop our understanding of shared decision-making in myeloma.
Shared decision-making is a process where patients and healthcare professionals work together to make important decisions about patients’ treatment and care choices. The process brings together the clinician’s medical expertise with the patient’s personal values, concerns, and needs.
Patients with myeloma face complex decisions about their treatment. These decisions often involve balancing risks, benefits, and personal goals. Our research aimed to understand how decision-making currently happens in myeloma treatment and care across Europe, and how it can be improved to better meet patient needs.
The project involved interviews and an online survey of patients and healthcare professionals across Europe. Read about the results in our report and further publications below.
Publications and outputs:
A European picture of patient involvement in myeloma treatment and care decision-making
Verbeke C, Schoefs E, Broekmans J, et al 280 Involvement of multiple myeloma patients in decisions on treatment and care: an online survey BMJ Evidence-Based Medicine 2024;29:A132.
Schoefs E, Michiels L, Verbeke C, et al 239 The undervalued role of nurses in shared decision making: insights from interviews across disease areas in Belgium, BMJ Evidence-Based Medicine 2024;29:A112
ACKNOWLEDGEMENT:
MPE would like to thank all project participants and our project steering committee. We would like to thank KU Leuven, Belgium, for the collaboration and conducting the research project. Thank you to Takeda for funding this research project.
