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ARMENIA

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Armenian Hematology Association

Contact person: President – Prof. Daghbashyan, Secretary – Y. Hakobyan

Address: Nersisyan 7, 0014 Yerevan, Armenia

Website: www.facebook.com/armhema

E-mail: armhema@gmail.com

AUSTRIA

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Multiples Myelom Selbsthilfe Oesterreich (MMSOe)

Contact person: Sonja Pearsall

Address: 1180 Vienna, Herbeckstrasse 126, Austria

Website: www.multiplesmyelom.at

E-mail: sonjapearsall@hotmail.com

BELGIUM

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Contactgroep Myeloom en Waldenström Patiënten Vlaanderen vzw (CMP vzw)

Contact person: Jeannot Poelman

Address: Boordeken 4, B-2980 Zoersel, Belgium

Website: www.cmpvlaanderen.be

E-mail: jeannot@asp-online.be

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MyMu Wallonie-Bruxelles (MyMu)

Contact person: Thierri Barbieux

Address: Avenue Montgomery 12, 7500 Tournai, Belgium

Website: www.myelome.be

E-mail: thierribarbieux@myelome.be

CROATIA

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Udruga za podršku oboljelima od multiplog mijeloma (Mijelom CRO)

Contact person: Mira Armour

Address: Ulica grada Vukovara 226G, 10000 ZAGREB

Website: www.mijelom.hr

E-mail: mira@mijelom.hr

DENMARK

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Dansk Myelomatose Foreninge

Contact person: Bibi Moe

Address: Dalen 5, 4300 Holbæk, Denmark

Website: www.myelomatose.dk

E-mail: internationalt@myelomatose.dk

ESTONIA

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Eesti Müeloomiliit

Contact person: Mait Raava

Address: Vene Street 6, Tallin 10123, Estonia

Website: www.myeloomiliit.ee

E-mail: info@myeloomiliit.ee

FINLAND

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Suomen Syöpäpotilaat – Cancerpatienterna i Finland ry

Contact person: Minna Anttonen

Address: Malminkaari 5, 00700 Helsinki

Website: www.syopapotilaat.fi

E-mail: minna.anttonen@syopapotilaat.fi

FRANCE

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Association Française des Malades du Myélome Multiple (AF3M)

Contact person: Bernadette Isoir

Address: 28 rue Tronchet, 75009 Paris

Website: www.af3m.org

E-mail: af3m.bureau@af3m.org

GERMANY

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AMM-Online

Contact person: Lisa Kotschi

Address: Felix-Fechenbach-Bogen 39, 80797 München, Germany

Website: www.myelom.org

E-mail: amm-online-vorstand@myelom.org

 

Deutsche Leukämie- & Lymphom-Hilfe e.V. (DLH)

Contact person: Dr. Ulrike Holtkamp

Address: Thomas-Mann-Str. 40, 53111 Bonn

Website: www.leukaemie-hilfe.de

E-mail: u.holtkamp@leukaemie-hilfe.de

 

Myelom-Gruppe RHEIN-MAIN – Leukaemiehilfe RHEIN-MAIN e.V. (LHRM)

Contact person: Anita Waldmann (Chair) – Lara Kuerzer (Vice-chair)

Address: DE-65428 Ruesselsheim, Falltorweg 6

Website: www.myelom.net

E-mail: buero@LHRM.de

 

Myelom Deutschland e.V.

Contact person: Brigitte Reimann

Address: Hindenburgstr. 9,D-67433 Neustadt an der Weinstraße, Germany

Website: www.myelom-deutschland.de

E-mail: reimann@myelom-deutschland.de

HUNGARY

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MOHA– Foundation for Hungarian Oncohaematological Patients

Contact person: Ibolya Kéri

Address: 1155 Budapest, Litva utca 24

Website: www.onkohemat.hu

E-mail: moha@onkohemat.hu

ISRAEL

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אמ”ן – אגודה למיאלומה נפוצה

Contact person: Varda Shoham

Address: Pob 18 Savion 5691501 Israel

Website: www.amen.org.il

E-mail: info@amen.org.il

Amyloidosis Israel

Contact person: Daniel Drimer

Address: Shlomo Tzemach 3, Jerusalem 9619003, Israel

Website: –

E-mail: ddrimer@012.net.il

LATVIA

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Onkoloģisko pacientu atbalsta biedrība “Dzīvības koks”

Contact person: Antra Altmane

Address: Melnsila Street 13-1, Riga, LV 1046; Legal Address: Liepu Alley 11, Babites district, Latvia, LV-2101

Website: www.dzivibaskoks.lv

E-mail: dzivibaskoks@dzivibaskoks.lv

LITHUANIA

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Asociacija „Kraujas“

Contact person: Aistė Vadlūgaitė – Strelčiūnė

Address: Trakų str. 9/1, Vilnius, Lithuania

Website: www.kraujas.lt

E-mail: info@kraujas.lt


MACEDONIA

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БОРКА-за секој нов ден

Contact person: Biljana Dodeva-Hristovska

Address: ul.Bel Kamen br.7 , 1000 Skopje, Macedonia

Website: www.borka.org.mk

E-mail: biba@borka.org.mk

NETHERLANDS

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Stichting Hematon

Contact person: Ronald Voorthuis

Address: Postbus 8152, 3503 RD Utrecht

Website: www.hematon.nl

E-mail: ronald.voorthuis@hematon.nl

NORWAY

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Blodkreft Foreningen

Contact person: Jacob Hygen

Address: Torggata 16, 0181 Oslo, Norway

Website: www.blodkreftforeningen.no

E-mail: post@blodkreftforeningen.no

POLAND

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Fundacja Carita – Żyć ze Szpiczakiem

Contact person: Emilia Demczur

Address: Borusiaka 9, 58-530 Kowary, Poland

Website: www.fundacjacarita.pl

E-mail: kontakt@fundacjacarita.pl

 

Polskie Stowarzyszenie Pomocy Chorym na Szpiczaka

Contact person: Roman Sadżuga

Address: ul. Elbląska 5, Olsztyn 10-672

Website: www.szpiczak.org.pl

E-mail: romansadzuga@szpiczak.org.pl

PORTUGAL

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Associação Portuguesa Contra a Leucemia (APCL)

Contact person: Lara Cunha

Address: Rua Nunes Claro nº 8C. 1000-209 Lisboa

Website: www.apcl.pt

E-mail: geral@apcl.pt

 

Associação Portuguesa Leucemias e Linfomas (APLL)

Contact person: Isabel Leal Barbosa

Address: Estrada Interior da Circunvalação nº6657, 4200-177 Porto, Portugal

Website: www.apll.org

E-mail: geral@apll.org

ROMANIA

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Myeloma Euronet Romania (MER)

Contact person: Viorica Cursaru

Address: Calea Victoriei 194, Bucharest, Romania

Website: www.myeloma.ro

E-mail: viorica@myeloma.ro

 

SOS Mielom

Contact person: Lucica Nitu

Bucharest, Romania, Str. Hagi Ghita, no. 58, S1

Website: www.sos-mielom.ro

E-mail: contact@sos-mielom.ro

RUSSIA

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Society for Assistance to Patients with Oncohaematological Diseases

Contact person: Oksana Chirum

Address: –

Website: www.mm-blood.ru

E-mail: oksana.chirun@gmail.com

SERBIA

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Udruzenje obolelih od multiplog mijeloma

Contact person: Ana Kesic

Address: Mitropolita Petra 3,11000 Belgrade

Website: mijelomsrbija.wixsite.com/mijelom

E-mail: mijelom.srbija@gmail.com

SLOVAKIA

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Združenie pacientov s hematologickými malignitami

Contact person: Katarina Fedorova

Address: Nezabudkova 52, 821 01 Bratislava, Slovakia

Website: www.hematologickypacient.sk

E-mail: katarina1.fedorova@gmail.com

 

Slovenská myelómová spoločnosť

Contact person: MUDr. Zdenka Štefániková

Address: Antolská 11, 851 07 Bratislava, Slovakia

Website: www.myelom.sk

E-mail: predseda@myelom.sk

SLOVENIA

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Drustvo bolnikov z limfomom (DBL)

Contact person: Blaž Kondža

Address: Vodnikovo naselje 1, 1000 Ljubljana, Slovenia

Website: www.limfom.si

E-mail: blaz.kondza@gmail.com

 

Slovensko Združenje Bolnikov Z Limfomom In Levkemijo L&L

Contact person: Kristina Modic

Address: Povšetova 37, 1000 Ljubljana, Slovenia

Website: www.limfom-levkemija.org

E-mail: limfom.levkemija@gmail.com

SPAIN

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Comunidad Española de Pacientes con Mieloma Múltiple (CEPMM)

Contact person: Teresa Regueiro

Address: Santalla de Oscos 3, 24560 Toral de los Vados (León)

Website: www.comunidadmielomamultiple.com

E-mail: tregueirolopez@gmail.com

SWEDEN

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Blodcancerförbundet Sweden

Contact person: Lise-lott Eriksson

Address: Hamngatan 15B, 17266 Sundbyberg, Sweden

Website: www.blodcancerforbundet.se

E-mail: lise-lott@blodcancerforbundet.se

SWITZERLAND

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Stiftung zur Förderung der Knochenmarktransplantation Schweiz

Contact person: Candy Heberlein

Address: Vorder Rainholzstrasse 3, CH-8123 Ebmatingen

Website: www.knochenmark.ch

E-mail: c.heberlein@sos-leukaemie-myelom.ch

 

Myelom Kontaktgruppe Schweiz (MKgS)

Contact person: Ruth Bähler

Address: Obesunneweg 9, CH-4144 Arlesheim

Website: www.multiples-myelom.ch

E-mail: r.u.baehler@bluewin.ch

TURKEY

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KANKO/BIRKAN

Contact person: Sarper Diler

Address: KASAD-D center Cibali Mah., Üsküplü Cd No:11, Zeyrek/Istanbul, Turkey

Website: www.kokder.org

E-mail: info.kokder@gmail.com

UNITED KINGDOM

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Myeloma UK

Contact person: Shelagh McKinlay

Address: 22 Logie Mill, Beaverbank Business Park, Edinburgh, EH7 4HG

Website: www.myeloma.org.uk

E-mail: myelomauk@myeloma.org.uk

ASSOCIATE MEMBERS

CZECH REPUBLIC

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KPMM

Contact person: Alice Onderkova

Address: 1180 Vienna, Herbeckstrasse 126, Austria

Website: www.mnohocetnymyelom.cz

E-mail: koordinatorka@mnohocetnymyelom.cz

PORTUGAL

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Centro de Histocompatibilidade do Norte (CHN)

Contact person: Helen Alves

Address: Rua Dr. Robero Frias, 4200-465 Porto, Portugal

Website:

E-mail: helena.d.alves@gmail.com