Select a country on the map to see the members and organizations of that country
Full members
Armenia
Armenian Hematology Association
Contact person: Yervand Hakobyan
Address: Nersisyan 7, 0014 Yerevan, Armenia
Website: www.facebook.com/armhema
Austria
Multiples Myelom Selbsthilfe Oesterreich (MMSOe)
Contact person: Sonja Pearsall
Address: 1180 Vienna, Herbeckstrasse 126, Austria
Website: www.multiplesmyelom.at
Myelom- und Lymphomhilfe österrecih
Contact person: Elfi Jirsa
Address: Hervicusgasse 2/19, 1120 Wien, Austria
Website: www.myelom-lymphom.at
Belgium
Contactgroep Myeloom en Waldenström Patiënten Vlaanderen vzw (CMP Vlaanderen vzw)
Contact person: Jan Walschap
Address: Boordeken 4, B-2980 Zoersel, Belgium
Website: www.cmpvlaanderen.be
Mymu Wallonie-Bruxelles Asbl (Mymu)
Contact person: Bernadette Beaume
Address: Rue Léon Lefèvre 33, 5020 – Champion
Belgium
Website: www.myelome.be
Croatia
Udruga za podršku oboljelima od multiplog mijeloma (Mijelom CRO)
Contact person: Mira Armour
Address: Ulica grada Vukovara 226G, 10000 ZAGREB
Website: www.mijelom.hr
Hrvatska udruga leukemija i limfomi (HULL)
Contact person: Dražen Vincek
Address: Trg Hrvatskih Velikana 2/Ii, 10000 Zagreb, Republic Of Croatia
Website: www.hull.hr
Denmark
Dansk Myelomatose Foreninge
Contact person:
Address: Fiolgade 21B, 3000 Helsingør. Denmark
Website: www.myelomatose.dk
Finland
Suomen Syöpäpotilaat – Cancerpatienterna i Finland ry
Contact person: Jenni Tamminen-Sirkiä and Emma Andersson
Address: Malminkaari 5, 00700 Helsinki
Website: www.syopapotilaat.fi
France
Association Française des Malades du Myélome Multiple (AF3M)
Contact person: Eric Battini
Address: 28 rue Tronchet, 75009 Paris
Website: www.af3m.org
Germany
AMM-Online
Contact person: Diane Loening-Martens
Address: Hulterkamp 60, D-47807 Krefeld, München, Germany
Website: www.myelom.org
Deutsche Leukämie- & Lymphom-Hilfe e.V. (DLH)
Contact person: Dr. Ulrike Holtkamp
Address: Thomas-Mann-Str. 40, 53111 Bonn
Website: www.leukaemie-hilfe.de
Myelom-Gruppe RHEIN-MAIN – Leukaemiehilfe RHEIN-MAIN e.V. (LHRM)
Contact person: Dr. Otmar Pfaff (Chair) – Lara Kuerzer (2nd contact person)
Address: DE-65428 Ruesselsheim am Main, Hasslocher Strasse 118
Website: www.myelom.net
Myelom.Online e. V.
Contact person: Klaus Eisenbeisz
Adresse: Sauer Moor 1e, D-23845 Oering
Website: https://myelom.online
Ireland
Multiple Myeloma Ireland
Contact person: Fionnuala Duffy Multiple Myeloma Ireland
Board Member / Board Secretary
Info@multiplemyelomaireland.org.
Website: www.multiplemyelomaireland.org
Iceland
Perluvinir
Contact person: Kristín Einarsdóttir
Address: Reykjavík, Iceland
Website: krabb.is/myeloma
Israel
AMEN Israel
Contact person: Varda Shoham
Address: Pob 18 Savion 5691501 Israel
Website: www.amen.org.il
Amyloidosis Israel
Contact person: Rafi Amit
Address: Shlomo Tzemach 3, Jerusalem 9619003, Israel
Website: https://amyloidosis.org.il
Latvia
Onkoloģisko pacientu atbalsta biedrība “Dzīvības koks”
Contact person: Gunita Berke
Address: Melnsila Street 13-1, Riga, LV 1046; Legal Address: Liepu Alley 11, Babites district, Latvia, LV-2101
Website: www.dzivibaskoks.lv
Lithuania
Asociacija Kraujas“
Contact person: Ieva Drėgvienė
Address: Trakų str. 9/1, Vilnius, Lithuania
Website: www.kraujas.lt
Macedonia
HEMA- ONKO
Contact person: Milica Kuzmanoska
Address: ul.Kosta Novakovikj br.42-2-13, 1000 Skopje, Macedonia
Website: www.hema.org.mk
Netherlands
Stichting Hematon
Contact person: Ronald Voorthuis
Address: Postbus 8152, 3503 RD Utrecht
Website: www.hematon.nl
Stichting Amyloïdose Nederland (SAN)
Contact person: Ric-Paul Hammink
Address: Brasemsloot 17, 2724EL Zoetermeer (The Netherlands)
Website: www.amyloidose.nl
Norway
Blodkreft Foreningen
Contact person: Olav Ljøsne
Address: Torggata 16, 0181 Oslo, Norway
Website: www.blodkreftforeningen.no
Poland
Fundacja Carita – Żyć ze Szpiczakiem
Contact person: Łukasz Rokicki
Address: Borusiaka 9, 58-530 Kowary, Poland
Website: www.fundacjacarita.pl
Polskie Stowarzyszenie Pomocy Chorym na Szpiczaka
Contact person: Roman Sadżuga
Address: Legionów 53/9, 87-100 Toruń, Poland ul. Elbląska 5, Olsztyn 10-672
Website: www.szpiczak.org.pl
Go for Health! (PL: Kierunek Zdrowie)
Contact person: Dominik Rominski / CEO
Address: Legionów 53/9, 87-100 Toruń, Poland
Website: https://kierunekzdrowie.org/
Portugal
Associação Portuguesa Contra a Leucemia (APCL)
Contact person: Lara Cunha
Address: Rua Nunes Claro nº 8C. 1000-209 Lisboa
Website: www.apcl.pt
Associação Portuguesa Leucemias e Linfomas (APLL)
Contact person: Isabel Leal Barbosa
Address: Estrada Interior da Circunvalação nº6657, 4200-177 Porto, Portugal
Website: www.apll.org
Romania
Myeloma Euronet Romania (MER)
Contact person: Viorica Cursaru
Address: Calea Victoriei 194, Bucharest, Romania
Website: –
SOS Mielom
Contact person: Camelia Soceanu
Bucharest, Romania, Str. Hagi Ghita, no. 58, S1
Website: www.sos-mielom.ro
Russia
Society for Assistance to Patients with Oncohaematological Diseases “Mercy Bridge”
Contact person: Oksana Chirun
Address: Russian Federation, Moscow, Baumanskaya str. 53
Website: www.mmpatient.ru / www.mm-blood.ru
Serbia
Slovakia
Združenie pacientov s hematologickými malignitami
Contact person: Katarina Fedorova
Address: Nezabudkova 52, 821 01 Bratislava, Slovakia
Website: www.hematologickypacient.sk
Slovenská myelómová spoločnosť
Contact person: MUDr. Zdenka Štefániková
Address: Antolská 11, 851 07 Bratislava, Slovakia
Website: www.myelom.sk
Slovenia
Drustvo bolnikov z limfomom (DBL)
Contact person: Blaž Kondža
Address: Vodnikovo naselje 1, 1000 Ljubljana, Slovenia
Website: www.limfom.si
Slovensko Združenje Bolnikov Z Limfomom In Levkemijo L&L
Contact person: Kristina Modic
Address: Povšetova 37, 1000 Ljubljana, Slovenia
Website: www.limfom-levkemija.org
Društvo bolnikov s krvnimi boleznimi Slovenije
Contact person: Jožica Filipčič
Address: Slovenska cesta 30, 1234 Mengeš, Slovenia
Website: www.drustvo-bkb.si
Spain
Asociación Española de Amiloidosis (AMILO)
Contact person: María del Carmen Nadal Massanet
Address: C/Venezuela n.2 10 C Coslada 28823 MADRID
Website: www.amilo.es
Agrupación Española de Entidades de Lucha contra la Leucemia y Enfermedades de la Sangre (AELCLES)
Contact person: Elena Palma
Address: Calle de L’Illa Formentera, 35, 46026 València, Valencia, Spain
Website: www.aelcles.org
Sweden
Blodcancerförbundet Sweden
Contact email: info@blodcancerforbundet.se
Address: Hamngatan 15B, 17266 Sundbyberg, Sweden
Website: www.blodcancerforbundet.se
Blodcancerforum
Contact person: Lise-Lott Eriksson
Address: Kellgrens gata 10, Stockholm 112 51, Sweden
Website: https://blodcancerforum.se
Switzerland
Stiftung zur Förderung der Knochenmarktransplantation Schweiz
Contact person: Jeroen Goede
Address: Witikonerstrasse 37. CH-8032 Zürich
Website: www.knochenmark.ch
MPS Myelom Patienten Schweiz
Contact person: Florin Rupper
Address: Wiggenrainstr.14a, CH 9404 Rorschacherberg
Website: www.multiples-myelom.ch
Turkey
KANKO/BIRKAN
Contact person: Sarper Diler and Yasemin Kaptan
Address: KASAD-D center Cibali Mah., Üsküplü Cd No:11, Zeyrek/Istanbul, Turkey
Website: www.kokder.org
United Kingdom
Myeloma UK
Contact person: Shelagh McKinlay
Address: 22 Logie Mill, Beaverbank Business Park, Edinburgh, EH7 4HG
Website: www.myeloma.org.uk
Associate members
Bosnia and Herzegovina
Association of Patients with Multiple Myeloma, Myelodysplastic Syndrome and other Rare Blood Diseases in Bosnia and Herzegovina
Contact person: Eldar Pezer, General Secretary
eldar.pezer@mijelom.ba
https://mijelom.ba/
Canada
Myeloma Canada
Contact person: Martine Elias and Michelle Oana
Address: 1255 Transcanada Suite 160 , Dorval , QC, H9P 2V4 Canada
Website: www.myeloma.ca
Czech Republic
KPMM
Contact person: Alice Onderkova
Address: Kamenice 753/5, 625 00 Brno, Czech Republic
Website: www.mnohocetnymyelom.cz