AGM 2020 Agenda

Friday, 6 March 2020

13:00 – 15:00Check-in and registration Lunch at the hote
15:00 – 15:10Welcome & Introductions
15:10 – 16:15Myeloma and Al Amyloidosis Treatment Updates
15:15 – 17:45

Panel Reimbursement and HTA

  • Panel Reimbursement and HTA
  • Patient organisation experience of being involved in HTA
  • Experience of reimbursement and Access in CEE
  • Overview of legislative proposal on joint clinical assessments on HTA
  • Question and answer panel session

 

17:45 – 18:00Coffee break
18:00 – 19:00Spotlight on MPE Scholarship programme 5 minute presentations from 5 MPE members
20:00 – 22:00Dinner at the hotel

Saturday, 7 March 2020

09:00 – 10:00Big data in haematology, the Harmony example
15:00 – 15:10Coffee break
10:15 – 11:15The role of MRD in myeloma and related diseases
11:15 – 11:30Coffee break
11:30 – 12:30BREAKOUT SESSIONS

Breakout session 1

Personalised medicine

Breakout session 2

Myeloma and AL Amyloidosis treatment in countries with access barriers

12:30 – 14:00

Lunch (Hotel Restaurant)

15:15 – 17:45ROTATING WORKSHOP SESSIONS
(45 minutes each – Choose 2 out of 3, 15 min for rotation)

Workshop 1

How to develop patient materials for your organisation

Workshop 2

Patient involvement in EMA

Workshop 3

Strategies to address late diagnosis

15:45 – 16:15Coffee break
16:15 – 17:15

The impact of myeloma and AL Amyloidosis in carers.

What are the issues and challenges? What support do they need?

19:30 – 22:00Offsite dinner

 

Sunday, 8 March 2020

8:30 – 13:00 AGM General Assembly (MPE full members only). It will be followed by a farewell lunch.