WECAN Academy 2019

  The first WECAN Academy organised by the Workgroup of European Cancer Patient Advocacy Networks (WECAN) will take place 6-9 July 2019 in Frankfurt, Germany. This training programme is aimed at growing the knowledge and skills of more than 100 European leading patient advocates, and those who joined the community more recently, in the areas of:

HARMONY reaches milestone capturing data from 45,000 patients with blood cancers

  The HARMONY Alliance is a public-private partnership of more than 80 organizations (53 Partners and 35 Associated Members) funded by the Innovative Medicines Initiative for a period of 5 years (2017-2021). Myeloma Patients Europe (MPE) is part of the HARMONY Patient Cluster which is a unique group of 7 European Patient Umbrella Organizations working in the different areas of hematological diseases within the HARMONY Alliance.

Myeloma Patients Europe webinar on personalised medicines in myeloma

  Myeloma is the disease with the highest number of approved drugs over the last 15 years. Actually, the prognosis of the disease has been tripled. As myeloma is a very heterogeneous disease, not all treatments are suitable for each patient. The challenge now is to choose the right treatment for each individual patient in order to improve patient health outcomes, increase the value of new medicines to healthcare systems and reduce healthcare costs. With…

EHA 2019 myeloma highlights

  More than 12.600 people attended the European Hematology Association (EHA) Annual Meeting, the largest EHA Congress ever recorded with a growth of more than a thousand participants from last year. EHA 2019 was held from 13 to 16 June in Amsterdam, The Netherlands where 360 presentations and more than 1300 posters were presented to update the latest development in haematology.

Takeda announces discontinuation of the phase 3 clinical trial TOURMALINE-AL1 in AL amyloidosis

  The pharmaceutical company Takeda announced that the Phase 3 TOURMALINE-AL1 clinical trial in patients with relapsed or refractory AL amyloidosis did not meet the first of two primary endpoints. Treatment with ixazomib in combination with dexamethasone did not demonstrate a significant improvement in overall hematologic response compared to physician’s choice of standard of care regimens. As a result of this analysis, Takeda has decided to discontinue the trial.