MPE works closely with researchers, academics, government, policy makers, authorities and the pharmaceutical industry, featuring a systematic, efficient and accountable network of advocates speaking from the unique perspective of the myeloma patient community.
Besides providing education, information and support to its member-groups across 30 European countries, MPE advocates for to achieve the best possible research and equal access to the most innovative treatment and care. With this aim, Myeloma Patients Europe (MPE) is developing a series of Community Advisory Boards (CABs) focused on myeloma.
A CAB is a scientific working group of patient advocates to monitor pharmaceutical developments in the given disease area through active and targeted interaction and long-term cooperation with pharmaceutical manufacturers, regulators, and the scientific community working in the field. Pursuing this mission, CABs build on the work of volunteer expert patients in liaising with the pharmaceutical industry and other stakeholders.
The first Myeloma Community Advisory Board (Myeloma-CAB) is a working group of MPE that aims to promote best-in class myeloma research as well as the harmonisation of good clinical practice, standard of care and access to best available myeloma therapies and diagnostic tools.
Myeloma-CAB meetings are based on the proven CML Advocates Network and ECAB model implemented by the HIV patient community and European AIDS Treatment Group (EATG) for more than a decade. They are community-run advisory boards where the patient community decides on the topics of highest relevance and impact for the patient community. Participants of the Myeloma-CAB meetings will have the opportunity for two-way dialogue discussing key topics in myeloma between leading advocates of the patient community and external stakeholders, and agreeing potential follow-up actions.
All agenda points of Myeloma-CAB meetings are decided by the Myeloma-CAB chairs, in consultation with the Myeloma-CAB Steering Committee. External stakeholders attending the Myeloma-CAB meeting are invited to make suggestions for agenda points, but the Myeloma-CAB makes the final decision in the interests of the community.
The CAB meetings are planned in a holistic view of using the opportunity of having the top leaders from MPE gathered, and in addition to holding discussions with the pharmaceutical industry and other stakeholders, the CAB meeting will be used for training and capacity building of the advocates.