Helping patients reclaim a life of possibility
Launch of new myeloma patient support group, Myeloma Forward, in Northern Ireland On Monday, 23 March a new myeloma patient support group, called Myeloma Forward, launched in Belfast, Northern Ireland (NI). Myeloma Forward will hold bi-monthly meetings where speakers talk about some aspect of living with myeloma and share experiences and stories, providing peer support…
MPE team members Kate Morgan (Co-CEO) and Barbara Leonardi (President) visited a private plasma donation centre in Vienna, Austria. Plasma donations are needed from people to produce immunoglobulin replacement therapy (you might hear it called IVIG) which is used in myeloma to reduce the risk of infection. It is of interest to MPE because myeloma…
Myeloma Patients Europe (MPE) will hold a webinar on the generics market in Europe and implications for cancer treatment and care on Monday 30th March from 17:00 – 18:30 CET. A generic medicine has the same active ingredient as a branded medicine and can be produced after the patent for the branded medicine expires. For…
Myeloma has always been an incurable cancer which is becoming increasingly chronic with treatment advances and access. Whilst the community remains cautious talking about myeloma as a curable cancer there is optimism amongst industry experts.The Myeloma Cure Summit was an event organised by the International Myeloma Society in Miami, Florida, USA from 20 – 21 February 2026.…
Zvika’s journey with myeloma began sixteen years ago with monoclonal gammopathy of undetermined significance (MGUS). Over time, it progressed to smouldering myeloma, and eventually to myeloma. He’s experienced a wide variety of treatments from clinical trials to a stem cell transplant and emerged with unexpected insights about what truly matters. The internet doesn’t tell…
When Kayleigh’s husband was diagnosed with myeloma in October 2020, everything changed overnight. The couple are from Basingstoke, UK, about an hour from London. They both worked together in a shopping centre, meaning they are on their feet all day interacting with the general public. Martin’s symptoms began as a bad back—something Kayleigh initially…
Maria is Greek-Australian and moved from Sydney to London with her adult daughter. A former research centre director, she had always lived an active, independent life. Three years ago, at the age of 64, Maria began experiencing lower back pain. It wasn’t until she went on holiday and was forced to return home in a…
Sandra, 50, lives in Belgrade, Serbia. She’s a mother to two teenagers and worked as an interpreter until recently. “I worked long hours,” she recalls. “Sometimes ten, twelve hours on my computer. Sometimes sleepless nights.” Listening to your body: the diagnosis journey At 48, Sandra developed fatigue, headaches, and anaemia. Like many women approaching fifty,…