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150 patients, clinicians and advocates gathered in Warsaw for a landmark hemato-oncology forum

On 13–14 December in Warsaw, the Carita Foundation hosted its Hemato-Oncology Patient Forum, bringing together 150 participants including patients, clinicians, pharmaceutical representatives and volunteers.  The event marked the 15th anniversary of the Carita Foundation and the 35th anniversary of the International Myeloma Foundation (IMF), which co-organised the Forum alongside MPE.  The programme featured international experts and…

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MPE response to EMA consultation on their “Reflection paper on patient experience data (PED)”

Last week Myeloma Patients Europe (MPE) submitted a response to the European Medicines Agency (EMA) open consultation on their “Reflection paper on patient experience data (PED)”. PED refers to data from patients that includes their perspectives, preferences and experiences with different aspects of their disease and treatments, such as quality of life and risk tolerability,…

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