Helping patients reclaim a life of possibility
Sandra, 50, lives in Belgrade, Serbia. She’s a mother to two teenagers and worked as an interpreter until recently. “I worked long hours,” she recalls. “Sometimes ten, twelve hours on my computer. Sometimes sleepless nights.” Listening to your body: the diagnosis journey At 48, Sandra developed fatigue, headaches, and anaemia. Like many women approaching fifty,…
Last week Myeloma Patients Europe (MPE) submitted a response to the European Medicines Agency (EMA) open consultation on their “Reflection paper on patient experience data (PED)”. PED refers to data from patients that includes their perspectives, preferences and experiences with different aspects of their disease and treatments, such as quality of life and risk tolerability,…
The largest haematology meeting in the world has just finished. The American Society of Hematology (ASH) Annual Congress took place in Orlando, Florida, US, where the latest research in blood diseases was presented. Myeloma Patients Europe (MPE) interviewed key experts to learn more about the most relevant studies and abstracts in myeloma and AL amyloidosis.…
From 6-9 December Myeloma Patients Europe (MPE) attended the American Society of Hematology (ASH) Annual Meeting in Orlando, Florida. Over 20,000 researchers, doctors, nurses and patient advocates attended the meeting to share and discuss the results of the latest research from across blood cancers. ASH was a great way to close out another successful year…
Myeloma Patients Europe (MPE) will host a webinar covering key updates on myeloma presented at the American Society of Hematology (ASH) Annual Congress, which will take place from 6–9 December 2025 in Orlando, Florida, USA. The webinar will be held on Wednesday, 17 December 2025, from 17:00 – 18:00 CET. It will be led by Prof. Dr. Hermann Einsele, Director of the Department…
On Saturday, 18 October, a regional meeting of patients, doctors, associations, and institutional representatives from Bosnia and Herzegovina, Croatia, and Serbia was held in Sarajevo, under the title “Together for Life with Myeloma” – Myeloma Day 2025, organised by Mijelom u BiH, (the Association of Patients with Multiple Myeloma, Myelodysplastic Syndrome, and Other Rare Blood Diseases…
This September, our Slovenian member organisation, Društvo BKB, once again marked Blood Cancer Awareness Month and European Myeloma Day, with a wide range of activities dedicated to raising awareness and supporting patients across Slovenia. They organised 12 information stands in health centres, hospitals, and at the University Medical Centres in Ljubljana and Maribor. A special…
Throughout September, the Multiple Myeloma Patient Association of Serbia (MMPAS) marked Blood Cancer Awareness Month with a powerful and heartfelt series of activities across the country — especially in smaller towns, where awareness of multiple myeloma remains extremely low. Guided by empathy and driven by purpose, they launched two national campaigns focused on informing, educating,…