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150 patients, clinicians and advocates gathered in Warsaw for a landmark hemato-oncology forum

On 13–14 December in Warsaw, the Carita Foundation hosted its Hemato-Oncology Patient Forum, bringing together 150 participants including patients, clinicians, pharmaceutical representatives and volunteers.  The event marked the 15th anniversary of the Carita Foundation and the 35th anniversary of the International Myeloma Foundation (IMF), which co-organised the Forum alongside MPE.  The programme featured international experts and…

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MPE response to EMA consultation on their “Reflection paper on patient experience data (PED)”

Last week Myeloma Patients Europe (MPE) submitted a response to the European Medicines Agency (EMA) open consultation on their “Reflection paper on patient experience data (PED)”. PED refers to data from patients that includes their perspectives, preferences and experiences with different aspects of their disease and treatments, such as quality of life and risk tolerability,…

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Share your treatment experience, help shape the future of myeloma care

Myeloma patients may receive many different treatments throughout their care. Patients’ real-world experiences of treatments tell us how treatments work in everyday life. Myeloma Patients Europe (MPE) wants to hear from myeloma patients about their experiences with some particular treatments: Bispecific antibodies (such as teclistamab or elranatamab) CAR T-cell therapy (such as cilta-cel or ide-cel) Antibody–drug conjugates (such as…

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Dr. Charlotte Pawlyn

ASH 2025 summary video interviews

The largest haematology meeting in the world has just finished. The American Society of Hematology (ASH) Annual Congress took place in Orlando, Florida, US, where the latest research in blood diseases was presented. Myeloma Patients Europe (MPE) interviewed key experts to learn more about the most relevant studies and abstracts in myeloma and AL amyloidosis.…

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MPE myeloma highlights from ASH 2025

From 6-9 December Myeloma Patients Europe (MPE) attended the American Society of Hematology (ASH) Annual Meeting in Orlando, Florida. Over 20,000 researchers, doctors, nurses and patient advocates attended the meeting to share and discuss the results of the latest research from across blood cancers. ASH was a great way to close out another successful year…

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Year in review 2025

MPE Year in Review 2025

We are delighted to share MPE’s  Year in Review 2025, a summary of what we have achieved this year alongside our many collaborators. This year we have strengthened partnerships, welcomed new members into our community and made progress on the European advocacy issues that matter most to patients and their families. We have worked together…

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MPE member AF3M holds 20th National Myeloma Day across France

On 15 November, MPE member organisation AF3M (the French Association of Myeloma Patients) held its 20th National Myeloma Day across 28 cities in France, including La Réunion Island. This remarkable milestone event brought together patients and carers for information and discussion, organised in collaboration with AF3M’s longstanding partner IFM (Intergroupe Francophone du Myélome), whose research…

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January

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