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Regional meeting in Sarajevo unites myeloma community

On Saturday, 18 October, a regional meeting of patients, doctors, associations, and institutional representatives from Bosnia and Herzegovina, Croatia, and Serbia was held in Sarajevo, under the title “Together for Life with Myeloma” – Myeloma Day 2025, organised by Mijelom u BiH, (the Association of Patients with Multiple Myeloma, Myelodysplastic Syndrome, and Other Rare Blood Diseases…

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Watch our webinar “How are costs and medicine effectiveness part of decision-making in medicine access?”

Aimed at patients, carers and patient advocates, as well as to a general audience, the webinar provides basic knowledge on the topic of cost-effectiveness analysis in decision-making (including health technology assessment) on new medicines. This webinar was organised as part of the ASCERTAIN project, which works to improve affordability and accessibility to innovative health technologies across…

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Slovenia ‘lights up’ during Blood Cancer Awareness Month

This September, our Slovenian member organisation, Društvo BKB, once again marked Blood Cancer Awareness Month and European Myeloma Day, with a wide range of activities dedicated to raising awareness and supporting patients across Slovenia. They organised 12 information stands in health centres, hospitals, and at the University Medical Centres in Ljubljana and Maribor. A special…

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Serbia marks European Myeloma Day with a packed September

Throughout September, the Multiple Myeloma Patient Association of Serbia (MMPAS) marked Blood Cancer Awareness Month with a powerful and heartfelt series of activities across the country — especially in smaller towns, where awareness of multiple myeloma remains extremely low. Guided by empathy and driven by purpose, they launched two national campaigns focused on informing, educating,…

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Watch our Webinar on myeloma and infections

We held our latest webinar on September 11th, called Myeloma and infection: clinical and lived perspectives for myeloma patients, carers and advocates. Jackie Quinn, Myeloma Clinical Nurse Specialist, Belfast Trust presented on how myeloma and treatments increase infection risk, covering immunisations, bispecific antibody risks, and preventive medications. Mimi Quinn, myeloma patient from Ireland shared her personal…

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