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We are proud to highlight the work of one of our Polish members, Fundacja Carita, which recently organised the European Forum of Hemato-Oncological Patients. This forum brought together experts and stakeholders to discuss crucial topics in haematology and patient advocacy. The event featured 12 discussion panels and lectures, delivered by 28 distinguished speakers from fields…

Myeloma Patients Europe (MPE) is proud to present its Year in Review 2024, highlighting achievements and milestones that reflect our commitment to improving outcomes and quality of life for myeloma and AL amyloidosis patients. This report showcases MPE’s expanded efforts to represent patient needs in European health policy, generate robust evidence that will improve patient…

This week MPE provided feedback on the draft of the fifth implementing act (out of six planned to be adopted this year) paving the road for the application of the Health Technology Assessment (HTA) Regulation from 12 January 2025. The fifth implementing act focuses on joint scientific consultations on medical devices and in vitro diagnostic…

Last week Myeloma Patients Europe (MPE) provided feedback, as part of a public consultation, on the new European Medicines Agency (EMA) policy on the handling of competing interests of scientific committees’ members and experts. The new policy increases restrictions for the participation of experts, including patient experts, in the EMA procedures assessing specific medical products.…