ASCO 2019 – Lenalidomide reduces risk that smoldering myeloma will progress to myeloma in high risk patients

Conferences, MyelomaLeave a comment

  The phase II/III E3A06 randomized clinical trial found that lenalidomide (Revlimid) significantly reduces the risk of smoldering multiple myeloma (SMM) — a precancerous condition — from progressing to cancer in patients at moderate or high-risk. Organ damage is typically seen in myeloma, which is a way to differentiate it from SMM. At three years, in 87% (phase II) and 91% (phase III) of people with SMM receiving lenalidomide, the condition did not progress to…

Survey on myeloma patient information needs – UK patients required

MPE, Myeloma, Patient evidenceLeave a comment

  Myeloma Patients Europe (MPE) and Amgen are launching a survey for European myeloma patients to understand their information needs. If you are a myeloma patient living in the UK, who has received at least one prior treatment or are currently on your first treatment, MPE would be very grateful if you would take the time to complete the anonymous survey. The survey will be run in 12 European countries, however, at this stage we…

Lenalidomide and pomalidomide based triplet combination regimens for myeloma patients receives approval from the European Commission

Access, MyelomaLeave a comment

The European Commission has approved two of Celgene’s IMiD ® -based combination regimens: Lenalidomide (Revlimid®) in combination with bortezomib and dexamethasone (RVd) in adult patients with previously untreated multiple myeloma who are not eligible for transplant Pomalidomide (Imnovid®) in combination with bortezomib and dexamethasone (PVd), in adult patients with multiple myeloma, who have received at least one prior treatment regimen including lenalidomide.

Advocacy sessions at EHA Annual Meeting 2019

AL amyloidosis, Conferences, MyelomaLeave a comment

  The European Hematology Association (EHA) celebrates its Annual Meeting in Amsterdam, from 13 to 16 June. This is the most important congress of haematology in Europe in which latest developments and cutting-edge research in haematological diseases will be discussed. Find more information about the congress here. For the first time, the session covering advocacy topics (both Patient Advocacy Track and EHA Advocacy Sessions) have been merged into the Joint EHA-Patient Symposium on Policy Challenges…

Call to action for Central and Eastern European (CEE) members – join MPE CEE workgroup on access

Access, MPELeave a comment

Myeloma Patients Europe (MPE) has launched a Central and Eastern Europe (CEE) Workgroup on Access during our recent Annual General Meeting (AGM) in Munich, Germany. The Workgroup is chaired by MPE board members, Kristina Modic, also CEO of our Slovenian member Slovensko Združenje Bolnikov Z Limfomom In Levkemijo L&L, and Biba Dodeva, President of our Macedonian member BORKA. It was launched in response to an identified need for coordinated action at a European level on…

Results of MPE members participation in EMA survey on bortezomib

MPE, Myeloma, Patient evidenceLeave a comment

As bortezomib, an anti-myeloma medicine, is licensed as both an intravenous (IV – through the vein via a drip) and subcutaneous medicine (through the skin, via an injection), the European Medicines Agency (EMA) recently conducted a survey to understand which method was most commonly used across Europe. They also asked about the location of administration (i.e. at home or in hospital) for patients.