#FacesOfMyeloma: Zvika’s story of living well with myeloma
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Zvika’s Story: Living Well with Myeloma
Zvika’s journey with myeloma began sixteen years ago with monoclonal gammopathy of undetermined significance (MGUS). Over time, it progressed to smouldering myeloma, and eventually to myeloma. He’s experienced a wide variety of treatments from clinical trials to a stem cell transplant and emerged with unexpected insights about what truly matters.
The internet doesn’t tell the whole story, use trusted sources
When first diagnosed, Zvika turned to the internet for answers.
“At first, the information online was discouraging. But today I have a much better understanding of advanced treatment and how to manage side effects, gained through experience.”
His treatment journey is a long one and has included VRD treatment (a mixture of [KJ2.1]Velcade, Revlimid, and dexamethasone), a daratumumab clinical trial, some experimental treatment with Mezigdomide, a stem cell transplant and now dual bispecific antibody therapy.
The gap between those early internet searches and his current reality taught him an important lesson: statistics don’t capture individual experiences or the rapid advancement in myeloma treatments, he finds it important to keep up to date with advances in treatment.
Discovering community
One of Zvika’s most significant discoveries was the myeloma patient community.
“I didn’t know about the incredible community. I discovered this warm, loving community of patients who have become true partners in this journey. They make the difficult moments much lighter.”
He now volunteers at AMEN, the Israel Multiple Myeloma Association, supporting other patients and using his Research & Development background to help with technical projects.
Caring for body and soul
Through his journey, Zvika learned that fighting myeloma isn’t just about medical treatment.
“I wish I had realised the importance of giving myself space. I learned that to help my body fight, I need to care for my soul by reducing stress, staying positive, and maintaining moderate physical activity.”
This led to a job change, with Zvika leaving his high-stress role as a Vice President.
“I didn’t know that leaving my high-stress role would lead me to a path of giving and helping others. Today, I feel a sense of fulfilment I never expected.”
By reducing stress and redirecting his energy toward helping others in the myeloma community, Zvika found deeper purpose and a more positive outlook.
Words of wisdom
Looking back at sixteen years—from MGUS to active disease, through clinical trials, transplant, and now bispecific therapy—Zvika’s message is clear:
“You are not alone and there is a meaningful life beyond the diagnosis. Care for your soul, not just your body—reduce stress, stay positive, stay active – trust your medical team as genuine partners.”
For Zvika, myeloma led him away from high-stress work and toward a life of giving and supporting others. It’s a path he never expected, but one that has brought profound fulfilment.
Check out our Faces of myeloma series to read more stories from patients and carers around Europe.