EMPOWERING MYELOMA ADVOCACY ACROSS EUROPE


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As part of Myeloma Patients Europe’s (MPE) ongoing work to ensure that the patient voice is fully represented and to strengthen organisations’ and individuals’ ability to advocate effectively, in 2017, MPE created the Advocate Development Program (ADP). The ADP is a 12-month training programme designed to develop participants’ advocacy knowledge and skills to serve patients better locally, nationally, and across Europe. Through the course, participants improve their understanding of clinical research and development, mechanisms of accessing diagnostics and drugs, interaction with stakeholders, including clinicians and industry, and the basics of evidence-based advocacy.

 

Ananda Plate, Former CEO and Board Member of Myeloma Patients Europe, explains in this video the main objectives of this programme:

 

 

The ADP combines virtual and in-person lectures to educate advocates on the disease and treatment of myeloma and AL amyloidosis, as well as the entire drug development process. Participants will understand the research, development, and regulatory processes and how advocates can influence and shape these to improve patient experiences and outcomes. In addition to monthly sessions, the programme includes participation in important myeloma scientific meetings in Europe (attendance sponsored by MPE), such as the European Haematology Association (EHA) Annual Meeting.

The MPE ADP limits cohort size (6 – 8 participants) to ensure an engaging learning environment and individual support.  This programme is a unique opportunity to build your advocacy skills while learning from experts and networking with peers.

 

Who should apply for the ADP?

Patients, carers, advocates, and community members who are interested in developing professional advocacy skills in the fields of myeloma and AL amyloidosis and who are committed to improving outcomes for patients across Europe.

 

Applicants for the ADP 2023 must meet all the following requirements:
  • Commitment to attend 14 virtual lectures, 2 hours each
  • Commitment to invest an additional 40 learning and homework hours (e.g. pre-reads, case studies, responding to questions, and completing assessments and evaluations).
  • Commitment to attend the full duration of the following congress (with travel and accommodation covered by MPE):
    • EHA Annual Congress 7th to 11th June 2023, Frankfurt, Germany
  • Fluency in English is essential to participate in lectures and discussions
  • Participants are required to have access to a working computer with a functioning camera and audio
  • The ADP welcomes patient advocates with any kind of professional background. However, healthcare professionals who are actively practicing their medical profession (e.g. as a haematologist or nurse in a clinic) are not eligible to apply for this programme.

The deadline to apply for the MPE ADP 2023 is over