EMPOWERING MYELOMA ADVOCACY ACROSS EUROPE 
Patricia holds a bachelor’s degree in Communications from the University of Florida and a master’s degree in Advertising Communications from the University Carlos III of Madrid. Patricia has experience in TV news production and social media management. She previously worked at a news station in Gainesville, Florida, USA managing the social media department. She speaks Spanish and English and is originally from Managua, Nicaragua. She is currently based in Madrid, Spain.
She holds a bachelor’s degree in journalism from the Complutense University of Madrid and a Master’s degree in Audiovisual Communication from the University Antonio de Nebrija in Madrid. Ana worked as a journalist on weekly newspapers specialising in health and on consumer health monthly magazines. She has been involved in different patient advocacy groups, first as a volunteer and later on within the communication department. Since 2014, Ana worked as PR and press consultant in…
Valentina holds a Bachelor’s degree in Political Science from the University of Cyprus and a Master’s degree in Human Rights from the University Sussex. Valentina has experience working in a multinational HR organization as an HR Research Officer and has also worked for one of the largest trade unions in Cyprus representing workers across all sectors. She speaks Greek and English and is originally from Cyprus. She is currently based in Munich, Germany.
She holds a degree from the advanced technical college in Ulm, Germany, and has an apprenticeship as an electrical engineering assistant. Ingrid has broad experience in large, medium-sized and start-up companies. She worked as referent and assistant to Executive Boards. In this role she was responsible, for board-, management- and finance-reporting and controlling. She has proficient expertise in project and programme management and implementation of administrative processes as well as in marketing and public relations.…
Lili holds a bachelor’s and a master’s degree in Molecular and Cellular Biology from the University of Glasgow, Scotland. During her studies, her main area of interest was Immunotherapy and Antibody Engineering. Lili has experience as a laboratory-based researcher focusing on novel drug design at pharmaceutical companies and in academia. Since moving to Hannover, Germany in 2019, she has worked as a freelance scientific writer, collaborating with the European Patients’ Academy on Therapeutic Innovation (EUPATI)…
Solène holds a PhD in Neuroscience and a Master of Biology and Physiology from Sorbonne University (Paris). She studied brain development during her PhD and then worked on brain cellular diversity as a researcher at the Helmholtz Zentrum München (Germany). Early involved in education, she has been leading holiday camps for children for many years and worked in a science museum during her studies to promote science, design exhibitions and lead workshops. Interested in science…
Silene holds a BSc (Hons) in Psychology from the University of Stirling and an MSc in Mental health in Children and Young People from the University of Edinburgh. She has experience in conducting qualitative research through a placement at the University of Stirling’s Careers and Employability Service, and quantitative research experience, using both primary and secondary data, through her degree research projects. Silene also has experience in supporting individuals with mental health difficulties through voluntary…
Jayne holds a BSc in Psychology, an MSc in Child, Adolescent and Family Mental Health, and a PhD in Health Sciences from the University of Stirling. She is interested in the impact of rare and life threatening conditions and generating evidence to support access to health technologies which improve quality of life for individuals and families. She previously worked as the Health Services Research Manager at Myeloma UK, as a lecturer in in Psychology…
Linda holds a Bachelor’s degree in Microbiology and a Master’s degree in Medical and Psychiatric Social work from the University of Madras, India. She has vast experience in leading, managing, teaching and training in the Social (non-profit) and Educational sectors. Her area of expertise in the past has been working with and for victims and survivors of domestic violence and abuse. Her passion and interest are to connect with vulnerable individuals/communities, be the change and…
Katie holds a Bachelor of Arts in Journalism and Mass Communication from the University of North Carolina at Chapel Hill and a Master of Arts from Georgetown University in Liberal Studies with a concentration in International Affairs. Katie has a decade of experience with nonprofit organizations and higher education institutions. Prior to joining MPE, Katie served as the Director of Development at a large New York City nonprofit supporting individuals with developmental disabilities where she…
She holds a degree in law specialized in EU and International Law and has broad experience being involved in several key cancer initiatives at a national and a European level. Nataša worked in Brussels for public affairs consultancy mostly in the field of health, environment and consumer protection, before assisting MEP setting up the informal group against cancer in the European Parliament, moving on to advocacy and representing the views of cancer patients for the…
Anne-Pierre brings 20 years of experience with a wide range of healthcare stakeholders (charity, patient organisation, governmental agency, consultancy and pharmaceutical industry). Her skills and expertise in health communication, cancer prevention and market access, combined with her personal experience as a leukaemia survivor, give her a unique perspective on patient engagement, advocacy and equal access to adequate care. Anne-Pierre holds a MSc in Economic Evaluation for Health Technology Assessment from the University of York, a…
She holds a Bachelor’s degree in Government from the London School of Economics and Political Sciences and a Master’s degree in International and European Politics from the University of Edinburgh. She also holds a Diploma in Public Relations from the Chartered Institute for Public Relations. Her main area of interest is health policy, with a specific focus on policies affecting drug development and access in European countries. Kate previously worked for eight years in the…
Chief Executive Officer
(CEO)
Nikita is cofounder of the Society for Assistance to Patients with Oncohaematological Diseases in Russia. He is a haematologist and psychotherapist. He participated in the foundation of the first organisation of haematological patients in the Russian Federation, the Charity Foundation “Haematology and Intensive Care” and he is founder of an Independent Association for Inpatient Psychological Care.
Lise-lott has been Chairman of the Swedish Blood Cancer Association since 2015 and was previously Chairman of the Blood Cancer Society in Stockholm. Lise-Lott lives in Stockholm, Sweden. She was diagnosed with essential thrombocytemia in 2011 and her father was diagnosed with myeloma in 2009. In the Swedish Blood Cancer Association, she is very active in policy related issues within the Swedish cancer care area with focus on access to new drugs for hematological disorders…
Roman is member of the Polish organisation Carita Zyc Ze Szpiczakiem and a smouldering myeloma patient since 2012. He completed higher law studies in Lodz, Poland, LL.M studies (EU Comparative Law) at Rijksuniversiteit Limburg in Maastricht, the Netherlands. He worked a long-time as lawyer at EY and he is currently working mainly with corporate clients such as General Electric, Emerson Electric and Ford.
Biljana is the president and project manager of “BORKA – for each new day”, MPE’s Macedonian member. Biba, as she is known, is a Macedonian singer-songwriter, musician and producer. After her mother’s melanoma diagnosis, she decided to use her celebrity status to create the Association “BORKA – for each new day” and be the voice of patients by generating awareness about cancer and problems in the health industry and to work for patients’ rights in…
Ron has been a board member of Amen Israel over the last eight years and has been a lawyer for the last 26 years and a businessman. He had his first contact with myeloma when his mother-in-law was diagnosed with myeloma 10 years ago. He has a master’s degree in Executive MBA Management programme from Tel Aviv University and received an outstanding Dean’s degree. He is committed to bring to MPE his experience in business…
Johannes gained a double degree in economics from FH Reutlingen (Germany) and ESC Reims (France) before embarking on a career in financial services. The majority of his 20 years in the banking industry were within Finance & Treasury. He has built, expanded and managed businesses in various circumstances and market environments, working closely with both internal and external clients and stakeholders of any kind. He combines vast practical experience with deep knowledge of interdependencies within…
Riikka-Leena is a board member of the Association of Cancer Patients in Finland (Suomen Syöpäpotilaat ry) which is a NGO founded in 1971. The Association coordinates cancer specific networks, including a network for myeloma patients. Riikka-Leena is an active member and a volunteer of the myeloma network and a patient advocate. The myeloma network offers peer-support and provides a way to share information and receive feedback from the patients. The mission of the Association is…
She has a Bachelor Degree in Bussiness and Management and 20 years of proffesional experiences on the fields of project management, sales, marketing, PR and human resources. Last 10 years she also had a lot of volunteer experiences on the fields of leadership, advocating, fundraising, project management, awareness campaigns, media, etc. on national and in some cases also international level. She is currently the Executive Director of Slovenian lymphoma and leukemia patient association, L&L…
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