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Listen the voice of myeloma patients in documentary “My myeloma: ready for the steps ahead”

Myeloma MPE participated in the discussion panel of the documentary premiere

March is Multiple Myeloma Awareness Month. This incurable disease affects increasingly young adult generation. In Europe, more than 50.900 people were diagnosed with myeloma in 2020[1].   Patient organisations from Central and Eastern Europe (CEE) have joined forces to create the documentary My myeloma: ready for the steps ahead, which premiered on 21th of March 2023 in Ljubljana, Slovenia. The premiere was attended by patient representatives, patient organisations, healthcare professionals and media representatives, who expressed…

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Happy anniversary AMILO!

MPE Picture of the awards given at the AMILO conference

One of the MPE Spanish members, the Spanish Amyloidosis Association (AMILO), last month celebrated its fifth anniversary by recognising the support and help other organisations have given them during these five years. MPE is pleased and proud to receive this recognition from AMILO at such an important event for our member. Along with MPE, other important national and international organisations were awarded, like the Amyloidosis Alliance and the Spanish Society of Hematology, represented by its…

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Job offer – Medical and Scientific officer

Job Title: Medical and Scientific Officer Position Type: Mini-job Probation period: six months Location: Germany Gross salary: 520 € monthly (approximately 43 hours a month) Tasks and core responsibilities (non-exhaustive and subject to change depending on the needs of the organisation). As Medical and Scientific officer, you will work in the Medical Education and Scientific Engagement area. You will assist the Head of Medical Education and Scientific Engagement with the following activities:   European Myeloma and…

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T2EVOLVE and QUALITOP launch European patient survey on CAR-T treatment

THE IMI T2EVOLVE Project and the Horizon 2020 QUALITOP Project have launched a European patient survey on CAR-T treatment. The survey aims to inform on patient and carer experiences and challenges of receiving CAR-T and to identify information needs and gaps across Europe. The results of the survey will be used for research purposes and published anonymously on project partner websites as well as in academic journals.   The T2EVOLVE-QUALITOP European patient survey on CAR-T…

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