EMPOWERING MYELOMA ADVOCACY ACROSS EUROPE


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Project Launch date: Friday 25th February 2022

This project aims to examine the preferences of working-age myeloma patients. The research will expand our understanding of what is important to patients who are younger than the average age of patients with myeloma (average age at diagnosis being 70), what it is like to live with multiple myeloma, what the priorities for treatment are, and what would help working-age patients and/or their family. A segment of the project will be dedicated to a discussion on early supportive and palliative care to understand more about how patients and carers have been involved in discussions around this important piece of the treatment and care pathway.

 

This will be a qualitative research project including patients from both eastern and western Europe to better understand differences in issues affecting this group of patients.

 

The outputs of this project will advance and expand our understanding of patients living with myeloma, which will inform future research and inform the care and treatment of patients.

 

This project will be managed by MPE and conducted by the University of Stirling.

 

Recruitment will be led by MPE and Fundacja Carita, a Polish patient organisation.

 

To stay up to date on the project’s progress, follow @MyelomaStudy on Twitter.

 

Recruitment status: Predicted to begin in May (If you would like to participate as a working-age patient, please email research@mpeurope.org and we will be in touch on whether you meet the eligibility criteria).