Find below the agenda for the MPE Annual General Meeting 2018. Speakers will be confirmed soon. This is a preliminary agenda and some topics are subject to change.

 

Friday, 20 April

 

13:00 – 15:00 Check-in and Registration / Finger buffet welcome lunch

 

15:00 – 15:10 Welcome & Introductions

 

15:10 – 15:45 Delegates elevator pitch

 

15:45 – 17:00 Scholarship & Capacity Building Programme – Activities from our members
17:00 – 17:15 Coffee break

 

17:15 – 18:30 Scientific update on diagnosis and treatment guidelines

 

19:00 – 20:00 Poster reception and speed dating

 

20:00 – 22:00 On site dinner

 

 

Saturday, 21 April

 

9:00 – 10:00 Community Advisory Boards

 

10:00 – 10:15 Coffee break

 

10:15 – 11:15 BREAKOUT SESSIONS

 

SCIENCE

Multiple myeloma related diseases

 

PATIENT SUPPORT AND EDUCATION

Coping with a chronic disease

 

ADVOCACY

What data do decision making bodies need from us?

 

11:15 – 11:30 Coffee break

 

11:30 – 12:30 BREAKOUT SESSIONS

 

SCIENCE

Clinical trial design and study endpoints

 

PATIENT SUPPORT AND EDUCATION

Rehabilitation, self-care and quality of life

 

ADVOCACY

Access and affordability

 

12:30 – 14:00 Lunch

 

14:00 – 16:15 WORKSHOPS (45 minutes each – Choose 3 out of 4)

 

Engaging with industry

 

Working with media

 

Voluntary worker management

 

Policy and public affairs

 

16:15 – 16:45 Coffee break

 

16:45 – 17:30 Journey to become a professional and empowered patient advocate

 

19:30 – 22:00 Off-site dinner in Brussels

 

 

Sunday, 22 April

 

9:00 – 11:30 MPE General Assembly and elections (only MPE members)

 

10:00 – 11:15 Update on diagnosis and treatment of AL amyloidosis

 

11:30 – 11:45 Coffee break

 

11:15 – 11:45 Coffee break

 

11:45 – 13:00 MPE General Assembly and elections (only MPE members)

 

11:45 – 13:00 Discussion with amyloidosis groups: How can MPE help the amyloidosis community?

 

13:00 – 14:00  Farewell lunch