Agenda

Friday, 7th July

 

15:00 – 15:15 Welcome and introductions

  • Hans Scheurer, President of MPE
  • Ananda Plate, CEO of MPE
15:15 – 15:45 Driving through the conference

  • Hans Scheurer, President of MPE
  • Alfonso Aguarón, Project Manager of MPE
15:45 – 17:00 MPE dialogues: “Where are we now in myeloma and how does the future look like?”

  • Dr. Albert Oriol, Hematology Department, Institut Català d’Oncologia, Spain
  • Sofia Sá Cardoso, Director of Portuguese Association Against Leukaemia (APCL)
  • Susanna Leto, former Patient Advocacy Director of Novartis Oncology Europe
  • Jaime Espín, PhD Professor in the Andalusian School of Public Health
  • Dr Beatriz Flores, Expert Medical Assessor, Medicines and Healthcare products Regulatory Agency (MHRA), UK
17:00 – 17:15 Coffee break
17:15 – 18:30 Atlas update

  • Ananda Plate, CEO of MPE
  • Kristina Modic, Director of L&L Slovenia
  • Lucica Nitu, President of SOS Mielom Romania
19:00 – 20:30 Dinner

 

Saturday, 8th July

 

9:00 – 10:00 Update on current diagnosis and treatment of myeloma and related diseases

  • Dr. Sonja Zweegman, VU University Medical Center of Amsterdam, Netherlands
10:00 – 10:15 Coffee break
 

BREAKOUT SESSION

10:15 – 11:15 AL amyloidosis

  • Dr. Giampaolo Merlini, Scientific Institute Policlinico San Matteo, University of Pavia, Italy
Stem cell transplant in myeloma

  • Dr. Gabor Mikala, St. Laszlo Hospital, Budapest, Hungary
11:15 – 11:30 Coffee break
 

BREAKOUT SESSION

11:30 – 12:30 Clinical trials and drugs under development
in myeloma & AL amyloidosis

  • Dr. Laurent Garderet, Saint-Antoine Hospital
    of Paris, France
Panel on myeloma treatment in the light of access barriers

  • Dr. Gabor Mikala, St. Laszlo Hospital, Budapest, Hungary
12:30 – 14:00 Lunch
 

ROTATING SESSIONS (45 minutes each – Choose 3 out of 4)

14:00 – 16:15 Cross Border Healthcare

  • Ananda Plate, CEO of Myeloma Patients Europe
Psychosocial -best practices in supporting patients and carers through the patient journey

  • Ibolya Keri, President of the Foundation for Hungarian Onco-haematological Patients
Drug approval route

  • Kate Morgan, Policy and Public Affairs Manager at Myeloma UK
Engaging with industry

  • Tamás Bereczky, Communications Advisor of the European AIDS Treatment Group
16:15 – 16:45 Coffee break
16:45 – 17:45 Patient advocate development strategies. How can an umbrella organisation help you? ·
MPE Advocate Development Programme update

  • Tamás Bereczky, Communications Advisor of the European AIDS Treatment Group
  • Ananda Plate, CEO of MPE
  • Lucica Nitu, President of SOS Mielom Romania
19:00 – 21:00 Off-site dinner

 

Sunday, 9th July

 

9:00 – 13:00 Annual General Meeting (Agenda to be defined)
13:00 – 14:00 Farewell lunch