AGM 2020 Agenda

Friday, 6 March 2020

13:00 – 15:00 Check-in and registration Lunch at the hote
15:00 – 15:10 Welcome & Introductions
15:10 – 16:15 Myeloma and Al Amyloidosis Treatment Updates
15:15 – 17:45

Panel Reimbursement and HTA

  • Panel Reimbursement and HTA
  • Patient organisation experience of being involved in HTA
  • Experience of reimbursement and Access in CEE
  • Overview of legislative proposal on joint clinical assessments on HTA
  • Question and answer panel session

 

17:45 – 18:00 Coffee break
18:00 – 19:00 Spotlight on MPE Scholarship programme 5 minute presentations from 5 MPE members
20:00 – 22:00 Dinner at the hotel

Saturday, 7 March 2020

09:00 – 10:00 Big data in haematology, the Harmony example
15:00 – 15:10 Coffee break
10:15 – 11:15 The role of MRD in myeloma and related diseases
11:15 – 11:30 Coffee break
11:30 – 12:30 BREAKOUT SESSIONS

Breakout session 1

Personalised medicine

Breakout session 2

Myeloma and AL Amyloidosis treatment in countries with access barriers

12:30 – 14:00

Lunch (Hotel Restaurant)

15:15 – 17:45 ROTATING WORKSHOP SESSIONS
(45 minutes each – Choose 2 out of 3, 15 min for rotation)

Workshop 1

How to develop patient materials for your organisation

Workshop 2

Patient involvement in EMA

Workshop 3

Strategies to address late diagnosis

15:45 – 16:15 Coffee break
16:15 – 17:15

The impact of myeloma and AL Amyloidosis in carers.

What are the issues and challenges? What support do they need?

19:30 – 22:00 Offsite dinner

Sunday, 8 March 2020

8:30 – 13:00 AGM General Assembly (MPE full members only). It will be followed by a farewell lunch.

AGM 2020 Agenda

Friday, 6 March 2020

13:00 – 15:00
Check-in and registration Lunch at the hote
15:00 – 15:10
Welcome & Introductions
15:10 – 16:15
Myeloma and Al Amyloidosis Treatment Updates
15:15 – 17:45
Panel Reimbursement and HTA

  • Panel Reimbursement and HTA
  • Patient organisation experience of being involved in HTA
  • Experience of reimbursement and Access in CEE
  • Overview of legislative proposal on joint clinical assessments on HTA
  • Question and answer panel session

 

17:45 – 18:00
Coffee break
18:00 – 19:00
Spotlight on MPE Scholarship programme 5 minute presentations from 5 MPE members
20:00 – 22:00
Dinner at the hotel

Saturday, 7 March 2020

09:00 – 10:00
Big data in haematology, the Harmony example
10:15 – 11:15
The role of MRD in myeloma and related diseases
11:15 – 11:30
Coffee break
11:30 – 12:30
BREAKOUT SESSIONS
Breakout session 1Personalised medicineBreakout session 2Myeloma and AL Amyloidosis treatment in countries with access barriers
12:30 – 14:00
Lunch (Hotel Restaurant)
15:00 – 15:10
Coffee break
15:15 – 17:45
ROTATING WORKSHOP SESSIONS45 minutes each – Choose 2 out of 3, 15 min for rotation)Workshop 1How to develop patient materials for your organisationWorkshop 2 Patient involvement in EMAWorkshop 3Strategies to address late diagnosis
15:45 – 16:15
Coffee break
16:15 – 17:15
The impact of myeloma and AL Amyloidosis in carers.What are the issues and challenges? What support do they need?
19:30 – 22:00
Offsite Dinner

Sunday, 8 March 2020

8:30 – 13:00 AGM General Assembly (MPE full members only). It will be followed by a farewell lunch.

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