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Find below the agenda for the MPE Annual General Meeting 2018. Speakers will be confirmed soon. This is a preliminary agenda and some topics are subject to change.

 

Friday, 20 April

 

13:00 – 15:00 Check-in and Registration / Finger buffet welcome lunch
15:00 – 15:10 Welcome & Introductions
15:10 – 15:45 Delegates elevator pitch
15:45 – 17:00 Scholarship & Capacity Building Programme –

Activities from our members

17:00 – 17:15 Coffee break
17:15 – 18:30 Scientific update on diagnosis and treatment guidelines
19:00 – 20:00 Poster reception and speed dating
20:00 – 22:00 On site dinner

 

Saturday, 21 April

 

ADVOCACY

What data do decision making bodies need from us?

9:00 – 10:00 Community Advisory Boards
10:00 – 10:15 Coffee break
10:15 – 11:15 BREAKOUT SESSIONS
SCIENCE

Multiple myeloma related diseases

PATIENT SUPPORT AND EDUCATION

Coping with a chronic disease

ADVOCACY

What data do decision making bodies need from us?

 

 

11:15 – 11:30 Coffee break
11:30 – 12:30 BREAKOUT SESSIONS
SCIENCE

Clinical trial design and study endpoints

PATIENT SUPPORT AND EDUCATION

Rehabilitation, self-care and quality of life

ADVOCACY

Access and

affordability

12:30 – 14:00 Lunch
14:00 – 16:15

WORKSHOPS

(45 minutes each – Choose 3 out of 4)

Engaging with industry Working with media Voluntary worker management Policy and

public affairs

16:15 – 16:45 Coffee break
16:45 – 17:30 Journey to become a professional and

empowered patient advocate

19:30 – 22:00 Off-site dinner in Brussels

 

Sunday, 22 April

 

9:00 – 11:30 MPE General Assembly and elections (only MPE members) 10:00 – 11:15 Update on diagnosis and treatment of AL amyloidosis
11:30 – 11:45 Coffee break 11:15 – 11:45 Coffee break
11:45 – 13:00 MPE General Assembly and elections (only MPE members) 11:45 – 13:00 Discussion with amyloidosis groups: How can MPE help the amyloidosis community?
13:00 – 14:00 Farewell lunch

 

 

AGM Video gallery
Web links