EMPOWERING MYELOMA ADVOCACY ACROSS EUROPE


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MPE Board

 

Lise-Lott Eriksson
LISE-LOTT ERIKSSON

Lise-Lott is the President of MPE since July 2022.

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Lise-lott has been Chairman of the Swedish Blood Cancer Association since 2015 and was previously Chairman of the Blood Cancer Society in Stockholm.
Lise-Lott lives in Stockholm, Sweden. She was diagnosed with essential thrombocytemia in 2011 and her father was diagnosed with myeloma in 2009. In the Swedish Blood Cancer Association, she is very active in policy related issues within the Swedish cancer care area with focus on access to new drugs for hematological disorders (especially myeloma), reimbursement, pricing and patient influence in clinical trials and health technology assessment decisions. She works actively to raise the status of expert patient advocates in Sweden.
As well as being an effective patient advocate, she has prior experience working as a physiotherapist, in a variety of private healthcare settings and since 2006 has been CEO and co-owner of LM Design to Live in AB a family business in the construction business producing and selling individually designed site-built villas and tenant-owned apartments.

RON DLOOMY

Ron is the Vice President of MPE since July 2017.

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Ron has been a board member of Amen Israel over the last eight years and has been a lawyer for the last 26 years and a businessman. He had his first contact with myeloma when his mother-in-law was diagnosed with myeloma 10 years ago. He has a master’s degree in Executive MBA Management programme from Tel Aviv University and received an outstanding Dean’s degree. He is committed to bring to MPE his experience in business management, membership of boards of directors of companies as well as non-profit organisations.
RIIKKA-LEENA MANNINEN

Riikka-Leena is the Secretary of MPE. She joined the Board in April 2018.

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Riikka-Leena is a board member of the Association of Cancer Patients in Finland (Suomen Syöpäpotilaat ry) which is a NGO founded in 1971. The Association coordinates cancer specific networks, including a network for myeloma patients. Riikka-Leena is an active member and a volunteer of the myeloma network and a patient advocate. The myeloma network offers peer-support and provides a way to share information and receive feedback from the patients. The mission of the Association is to secure equal care for cancer patients, in addition to securing the well-being and a quality of life of patients and their family members. Riikka-Leena isalso a member of two Patient Advisory Boards at the Tampere University Hospital.

Riikka-Leena graduated from the University of Turku with a master’s degree in Geography. She has also studied Journalism at the University of Tampere.

BILJANA DODEVA-BIBA

Biljana is the Treasurer of MPE since July 2022.

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Biljana is the president and project manager of “BORKA – for each new day”, MPE’s Macedonian member. Biba, as she is known, is a Macedonian singer-songwriter, musician and producer. After her mother’s melanoma diagnosis, she decided to use her celebrity status to create the Association “BORKA – for each new day” and be the voice of patients by generating awareness about cancer and problems in the health industry and to work for patients’ rights in Macedonia. She is committed to bring to MPE her knowledge of eastern European health systems and reimbursement processes and her experience as patient advocate.
ANANDA PLATE
ANANDA PLATE

Ananda is a Board member of MPE since March 2022.

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Ananda started getting involved in patient advocacy in 2007 after her cancer diagnosis. She later became the first CEO of Myeloma Patients Europe (MPE), a position she held for a decade. She has a law degree from the University of Barcelona (Spain) and a master’s degree in Health Policy, Planning and Financing from the London School of Economics and Political Science and the London School of Hygiene and Tropical Medicine. Her main fields of interest are cross border healthcare within the EU and health data protection. She has also worked at the leading Institute of Public Law (IDP Barcelona) and the European Commission (DG Health and Consumers), as well as collaborated with a number of patient organisations across Europe. Currently she is a member of the Ethics Committee at the Chamber of Physicians of Bavaria, Germany.
BARBARA LEONARDI
BARBARA LEONARDI

Barbara is a Board member of MPE since March 2022.

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Barbara is Patient advocate and a member of Carita, the Polish multiple myeloma patient organization. With diplomas in history of art and English-Polish translation, Barbara has established her professional career as a copywriter, editor and translator specializing in law, business and economy. After being diagnosed with multiple myeloma in 2019, she decided to get involved in patient advocacy. The first step was the one-year Advocacy Development Programme organised by Myeloma Patients Europe. The programme led to her becoming actively engaged with MPE projects and to voicing the patients’ issues on the European level. Barbara is strongly passionate about the patient’s role in the medical landscape and their rights to clear and thorough information. She believes that an illness shouldn’t define anybody, as it is just one of many experiences in a person’s life.
DIANE LOENING-MARTENS
DIANE LOENING-MARTENS

Diane is a Board member since March 2022.

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Diane is carer of a myeloma patient, her husband, and a volunteer in the organisation AMM-Online. She also was vice president at Myelom Deutschland in 2020 and, along with her husband, led the myeloma support group for patients and caregivers in Hamburg. Diane is a trained nurse with a special training in psychiatry and palliative care. She also an educator for early childhood. One of Diane’s interests is working to address the needs of younger patients and the improvement of the palliative care as part of myeloma treatment. Diane completed the MPE Advocate Development Programme (ADP) in 2019.

ZVI ZILBERMAN
ZVI ZILBERMAN

Zvi has been a board member of MPE since March 2022.

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Zvi is a myeloma patient and an active member of the organisation AMEN (Israel). He has graduated in Computer Science from the Technion, Israel institute of Technology and has a master’s in MBA with distinction from Derby University. He is a Software engineer with 25 years of experience in the fields of development, marketing, and program management in various hi-tech companies. For the last 10 years, Zvi worked for Intel Israel. He aims to improve early diagnosis of myeloma. In addition, he is willing to strengthen patient organisations across Europe by sharing knowledge and information. Zvi completed the MPE Advocate Development Program (ADP) in 2021.