MPE endorses the International COVID-19 Blood Cancer Coalition’s (ICBCC) patient impact statement

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A multi-stakeholder coalition consisting of more than 60 representatives from the global patient advocacy and clinical community has formed the International COVID-19 Blood Cancer Coalition (ICBCC) to address the specific impact of the pandemic on immunocompromised blood cancer patients and to recommend solutions and actions to mitigate those risks. The special vulnerability of those with blood cancers and others needs to be addressed in a proactive way. While we need to be prepared for surprises…

MPE support for Ukrainian myeloma and AL amyloidosis patients

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Myeloma Patients Europe (MPE) is here to support Ukrainian patients during this ongoing crisis. If you are a myeloma or AL amyloidosis patient in Ukraine or a refugee in another European country and in need of information on how to access treatment and support, please contact us at .

US FDA approves ciltacabtagene autoleucel (CARVYKTI) for relapsed or refractory myeloma

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The US Food and Drug Administration (FDA) has approved the CAR-T treatment ciltacabtagene autoleucel (also known as cilta-cel and marketed as Carvykti). Manufactured by Janssen, it is specifically approved for the treatment of patients with relapsed or refractory myeloma after four or more prior lines of therapy, including a proteasome inhibitor (like bortezomib), an immunomodulatory agent (like lenalidomide), and an anti-CD38 monoclonal antibody (like daratumumab or isatuximab). You can find the full Janssen press release…

A note from MPE on the situation in Ukraine

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Given the recent events on the world stage, we felt it was necessary to highlight our concern at the developing situation in Ukraine and to reiterate our support to patients, carers and our fellow patient advocacy groups within the country and in surrounding countries. Myeloma Patients Europe is a collaborative association of patient groups striving for better treatments and care for myeloma and AL amyloidosis patients in Europe. We strongly believe that all patients should have access to the best…