Myeloma Patients Europe (MPE), an European umbrella organisation representing myeloma and AL amyloidosis patient groups, is seeking an experienced Scientific Engagement Manager to develop the scientific and medical strategy of the organisation and to ensure all organisational programmes are underpinned by sound scientific information.
A core element of the role is involvement in the MPE flagship Myeloma Community Advisory Board (Myeloma-CAB), a programme launched in 2019 enabling formal discussions with the pharmaceutical industry and other stakeholders on clinical development, market access and patient engagement. The Scientific Engagement Manager will be responsible for participating in the Myeloma-CAB, implementing a training programme for members on scientific concepts and developments and providing comprehensive reviews of myeloma and AL amyloidosis clinical development programmes.
- Part-time (20h/week)
- Travel: Approx. 20 days of European travel per year
- Salary: 20.000 EUR GROSS
- Location: Munich, Germany.
- Reporting to: Head of Policy and Access / CEO
- Develop and maintain up-to-date knowledge of scientific and medical developments in myeloma and AL amyloidosis via literature reviews, liaison with key stakeholders, attending scientific congresses, etc.
- Develop and maintain an updated list of current key scientific literature and publications relating to myeloma and AL amyloidosis and establish a means of sharing this information with MPE staff and members as appropriate to ensure they are kept up-to-date with the latest research and development.
- Critically appraise and provide advice to MPE on pharmaceutical company clinical development programmes and design of clinical trials.
- Contribute to the development and implementation of MPE scientific and research-based strategic objectives.
- Underpin MPE programmes and initiatives, including educational/advocacy programmes and engagement with pharmaceutical companies, with scientific information and knowledge.
- Create and deliver training to MPE staff and members (patient advocates) on basic scientific and research concepts and developments in myeloma and AL amyloidosis – particularly for the flagship Myeloma Community Advisory Board.
- Work with the Communications Manager to review MPE patient materials and other external communications for scientific and medical accuracy.
- Provide scientific and medical input into the syllabus and training for MPE patient advocacy programmes such as the Advocate Development Programme and MPE Annual General Meeting.
- Establish an effective scientific advisory board, involving myeloma and AL amyloidosis key opinion leaders from across Europe to steer the work and strategy of MPE.
- Provide advice on issues affecting conduction of research and clinical trials in Europe.
- Work with the Head of Policy and Access to monitor drug development, licensing and market in myeloma and AL amyloidosis and to identify European and national barriers to access.
- Build good relations with members, internal and external stakeholders (including doctors, researchers and medical representatives within companies), and represent MPE at meetings as required.
- Attend scientific congresses and update MPE team and members on scientific developments, meetings and events including the European Haematology Association (EHA) Annual Congress and American Society of Haematology (ASH) Annual Scientific Meeting.
- Participate in advisory boards for the pharmaceutical industry, as necessary.
- Develop presentation materials as required.
- Execute other duties as may be required by MPE, as training and experience allow.
Knowledge, skills and qualifications
- Experience of being a medical writer or ability to write medical reports, papers and factsheets
- 5+ years of experience in a related field – preferably working in a non-profit organisation, clinical research or medical/scientific setting.
- Ability to clinical scientifically appraise early and late phase clinical trial design and appropriateness to patients.
- Understanding and experience in the research and development of new medicines and how they are made available to patients in Europe.
- Ability to explain complex scientific terms and knowledge into lay language for MPE staff, members, patients and carers.
- Experience in working with researchers, doctors and representatives from the pharmaceutical industry.
- Excellent educational and teaching skills and strong ability to represent the company in a professional manner at medical, scientific and public events.
- Highly effective communicator both orally and in writing; can get ideas across in group settings as well as in presentations and writing.
- Native level English language skills
- Experience in communicating with patients and carers.
- Good analytical, numerical abilities and ability to interpret complex information
- Independent, self-driven and pro-active.
- Competent in a range of software including Microsoft Office, other project-related tools as needed.
About Myeloma Patients Europe
Myeloma Patients Europe (MPE) is an umbrella organisation of myeloma patient groups and associations from across Europe. MPE is dedicated to improving the treatment, care and quality of life of patients with myeloma and AL Amyloidosis. To this end, the main goals of the organisation are:
- Collaborating on projects to the benefit of the myeloma community.
- Exchanging information and best practice.
- Developing existing patient groups and encouraging and facilitating the setting up of new groups.
- Helping to shape appropriate health-related policies and initiatives on a European and national level.
- Ensuring patients across Europe receive timely access to new treatment.
- Stimulating and promoting patient-centred research and clinical trials.
- Developing a strong evidence base for the needs and wants of patients and their role in research.
Providing information, educational and outreach programmes to member groups.
MPE acts as an umbrella organisation for 48 national myeloma patient groups from across 30 European countries. The team currently consists of six people working from different European countries. Find here more information about the Executive Office.