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MPE is inviting members to express their interest in participating in a small pilot on patient information for newly diagnosed myeloma patients.

As part of this pilot, MPE will be adapting and translating an Infopack for newly diagnosed patients (created by Myeloma UK) for use in small group of European countries. The Infopack provides information that patients may need to know following the diagnosis of myeloma and provides practical tips.

In the first instance, we will be selecting up to five countries to participate. We want to understand the resource involved in the project, the need and uptake of such information at national level.

If you are interested in participating, and meet the criteria outlined below, please email Kate Morgan by Monday 12 February at morgan@mpeurope.org

What is required of MPE members selected to participate?

The adaption and translation of the patient information will be coordinated by the team at MPE.

However, the chosen MPE members must be willing to assist with communication and dissemination of the information to myeloma patients and healthcare professionals in their country. They must also be willing to provide written feedback to MPE on the impact and reception of the Infopack amongst patients.

How will MPE choose the participants of the project?

The call for participants is open until Monday 12 February. We will select up to five countries to participate in the project.

In our selection, we will consider the following factors:

  • Unmet need in the country for patient information (e.g. lack of myeloma information available for patients)
  • Geographical spread (e.g. we want a fair representation of different countries across Europe)
  • Resources of the patient organisation (e.g. the capacity and funding available to members to create their own patient information)

If we do not receive enough interest in the pilot, MPE will select the relevant countries.

If we receive too many applications, relevant members will be considered first for similar projects.

How can I participate?

To participate, please send an email to Kate Morgan, Policy and Public Affairs Manager at morgan@mpeurope.org.uk

In the email, you should briefly outline your reasons for applying and how your organisation/patients in your country should benefit from this.

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