Delays in access to new cancer medicines and unjustifiable price rises for old ones disadvantage patients unnecessarily

AccessLeave a comment

Amsterdam, The Netherlands. Cancer patients are living longer and in many cases the disease is becoming chronic rather than acute. Access to drugs that help extend life and improve quality of life, and fair prices for those drugs are therefore essential for more and more people. But patients are badly served in this respect, with delays in the availability of new treatments and incomprehensible price rises for well-established therapies, including generics, according to the data…

IMI’s ADAPT SMART Kick-Starts 2017 by putting stakeholders at the centre

MPELeave a comment

London, January 18, 2017.- ADAPT SMART’s General Assembly, held at the European Medicines Agency (EMA), agrees to focus its final year on incorporating stakeholder feedback into the development of Medicines Adaptive Pathways to Patients (MAPPs) tools and methodologies. Myeloma Patients Europe (MPE) was attending this meeting. With growing international interest and visibility in the final year of the consortium, ADAPT SMART members have agreed to redouble their efforts to collaborate with key stakeholder groups and…

Patients and cancer experts launch a joint vision for improving cancer outcomes in Europe

Myeloma, Patient evidenceLeave a comment

A coalition of 60 patient advocates, healthcare professionals and scientists (including 3 Nobel Prize winners) from 20 European countries have come together to publish a blueprint for improving cancer outcomes and achieving better quality of life for cancer survivors throughout Europe.1 They are members of the European Cancer Concord (ECC®), an equal partnership between patients and cancer experts which launched the European Cancer Patient’s Bill of Rights on World Cancer Day 2014 in the European…

Innovative Medicines Initiative (IMI) approves € 40 million project for better care of patients with haematologic malignancies

MyelomaLeave a comment

Brussels/Salamanca, January 9, 2017. The Innovative Medicines Initiative (IMI) has approved HARMONY, a project that aims to foster better access and care for patients with various hematologic malignancies (HM) with the use of big data. The project is made up of 51 partners from 11 European countries, including 7 pharmaceutical companies. Other organisations such as Myeloma Patients Europe (MPE), Lynphoma Coalition, MSD Alliance or CLL Advocate will be involved in this project as well in…